I’m starting to believe that fibromyalgia flare is the memory of pains past. Many neurologists & even rheumatologists believe that FMS is triggered by past trauma, as is evidence by many abuse survivors developing it, as well as those in car accidents and soldiers returning injured from combat.
More & more my flares are starting to feel like things that have already happened to me. Today, when I managed to get up for a hot shower, I noticed my left knee was inexplicably twisted in addition to the neck, shoulder, hip, & ribs aching, plus the palms of my hands burning. So that was like the time I tripped in a pot hole & went flying to the pavement.
People ask me from time to time what it feels like. I’ve said it’s like someone has a voodoo doll of you, but most people can’t relate to that. I’ll try to relate my pain to you in terms of what I’ve experienced, since I’ve never actually been hit by a train. I hope you cannot relate.
Sometimes it’s the mild pain & fatigue of the flu. In that case, I get up, have a hot shower, & go to work.
Sometimes it’s like when you were six, climbed to the top of an armoire, & fell off on to your back & couldn’t walk for days.
Sometimes it’s like when you were 13 & someone picked you up & hurled you against a wall, then dragged you up some stairs.
Sometimes it’s like when you were nine and rolled down a steep hill & sprained your wrist and your ankle.
Sometimes it’s like when you got in a car accident going 15 mph & ached for days after. I can’t imagine what people at higher velocities suffer.
Sometimes it’s like when you were 16 & someone beat the crap out of you for several minutes.
Sometimes it’s like when someone picks you up & drops you from over their shoulders.
Sometimes it’s like being punched hard in the gut.
Sometimes it’s like when you were three & went tumbling down a full flight of concrete stairs.
And sometimes I wonder how I ended up with fibromyalgia. Hah!
These are just the most relatable snippets for those who wanted to understand what it feels like. Why did I go into flare this time? Well, sir, I went to Ikea, and then to Trader Joes. I carried in everything by myself. Yup, my body has become THAT stupid.
Of course I went to work Tuesday on wobbly legs & made myself worse. C’est la vie.
In happier news, fibromyalgia has never killed anyone. It’s not like MS or ALS or MD; it is not degenerative that anyone can tell. It’s kind of like a pain seizure, which is why seizure meds work on some of us. Most of us can manage with diet & mild exercise, plus occasional narcotics & relaxants. Some are on 24/7 narcotics. Some are on disability.
Me, I have more good days than bad now. But sometimes I wake up & it’s like past events have happened to me all over again, like today. Today I am naming Pothole Redux. Which, incidentally, is a great name for a Cars cover band.